I suppose I should stop slacking on updating. There's been a lot going on so it's not as if I didn't have anything to write about, but it was so much that I didn't even know where to begin. Not only that, but oftentimes, I felt... lost. My brain has been working some crazy overtime.
I haven't talked much of Can-man's dietary issues since we still don't have a good grip on Can-man's dietary issues. I had this thought that once we got it nailed down, I could talk about it and possibly help another lost mom or dad. I've found a few blogs that have either helped me with "safe" foods or things their kids had issues with eating that were similar to Can-man's own problems.
But here we are, four months since the first outbreak of (tmi ahead) chronic diarrhea and 9 months since a horrible hive/fever outbreak (possibly to whole milk) and I don't feel we're any closer to knowing what the root cause could be.
What we HAVE done, is rule out a whole bunch of things he doesn't have, too many to list here. He's had blood tests, stool tests, urinalysis, and repeat. With a kid that doesn't like to be touched, you may as well have tried plucking out each of his eyebrow hairs, one by one. After all these inconclusive tests, we're finally going for the endoscopy next month.
I know some parents choose not to go this route but we thought long and hard about it and we decided we needed some answers. Can-man had been off gluten for a good 2 months when the most recent (week and a half long) diarrhea bout occurred so we're at a loss as to what could be causing it.
So we'll see what happens. Maybe we can finally cross celiac disease off the list (blood test was negative but he had been off gluten for quite a while beforehand) and we'll also finally find out for sure if he's lactose intolerant.
What they can't test for is gluten intolerance, which sucks, since it's what I've long suspected is the biggest issue he has.
Going through all this with R overseas has been challenging, to say the least. There were days that were really, really bad. Bad to the point I told R it was worse than when he had to leave me and a days old Can-man right after my mom passed away.
Not comparing the death of my lovely mother to Can-man's issues but the overwhelming feeling of helplessness that has besieged me this whole summer has been a lot to handle on my own. Getting tests done, waiting for test results, getting negative test results, Can-man's still suffering, don't know what to feed him, R not being around like he (and I) would like to bounce ideas and frustration off of.
I can only thank my lucky stars this deployment has been easier in the sense he's able to communicate more than the last one. He's not EASY to get a hold of, per se, but I typically don't go more than 3-4 days without hearing from him. So there's THAT, and I'm grateful.
Hopefully, now that I have come to terms with a lot that is going on, I will be able to try and sort out and post about it here. Because there's a lot more going on, oh boy, yes there is.